Welcome!! Grab a cup of coffee and visit with us! We hope you enjoy our story! (((HUGS)))

Welcome!! Grab a cup of coffee and visit with us! We hope you enjoy our story! (((HUGS)))
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Wednesday, August 5, 2015

Please! Please pray for our Jacob

 Many of you know about the experimental surgery they did on Jacob 4 months before Tom first visited him in 2012.
They had not said a word to Tom that first visit. 

We "found" the almost healed 3 inch scar on the base of his skull/neck when I gave him a hair cut. Then I read it in his updated medical for his adoption finalization 8  months after the surgery. (none of the other 4 boys had any changes on their medicals we read prior to finalization, so we did not read Jacob's then) In Country Tom cared for him alone 1 week (with our 17 yr old son Gabriel) not knowing, and we cared for him at home about 3 weeks before figuring it out.

 We immediately had a children's neurologist at the University of MN see him. His first MRI was acceptable. The cysts still exist and they don't know why he was operated on. 
We knew we needed follow up MRIs but were told no worries unless we saw signs like difficulty swallowing or a decline in his abilities. His abilities were few back then. He could not support his body weight or move. Since then his abilities have increased tremendously! 

 Today Dad/Tom and Jacob spent the day at the Neurologists at the U of MN again. This time the news was not so good. The protective covering that surrounds the skull was "drilled" through for the surgery. It has not healed and is leaking fluid into his spine.
If he hits his head he could die. If he didn't die he would become an invalid.
He needs surgery to close this opening ASAP!

This is frightening news when you think of all of the gymnastics this boy does daily to "walk". Thank God that he has never hit his head!

Please pray for our precious LOVE Jacob. The JOY he brings our family is huge. We adore him. He has gone from lonely, isolated, frightened and abused, to our loving son, brother. 

There was a time he allowed abuse just for the attention he craved. He now realizes that we give him attention not for what he gives us, but for what we can give him. 

He is going to be afraid before and after the surgery. He has already been terrified/traumatized by the first surgery. 

Please pray he is able to adjust until he can come back home. He will be 70 miles away. Dad will take him, stay with him. We won't be able to be there for him. He adores Isaiah and this will be so hard on both boys. Isaiah has never had a sibling in a health crisis. His heart is worried. 

We know only by the Grace of God that Jacob has come this far. God LOVES him more than we do. He will care for Jacob, and He cares for Jacob better than we can. His Will be done.
Please pray for our LOVE!
Thank You! (((HUGS))) 

16 comments:

  1. Buy a helmet. TODAY. And make him wear it all the time.

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  2. http://www.aliexpress.com/popular/safety-helmet-for-toddlers.html

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  3. Thank You PL!! Our Neuro says a helmet will not solve the issue. If the helmet is hit the fluid will leak as well. :o( So complicated and confusing. Waiting for confirmation on surgery date. (((HUGS)))

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  4. Prayers coming sending so much love

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  5. I am so sorry to hear this news. Praying for precious Jacob.

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  6. Praying friend!!!! Hugs!!!

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  7. I'm so sorry, Elizabeth, but thankful a doctor found the problem before Jacob injured himself. We will be praying for protection and peace for dear, handsome Jacob and you all. Keep us posted on a surgery date!

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  8. We are praying!!! Praying for you too. This has got to be so hard on you. : (

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  9. God Bless you all! (((HUGS)))

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  10. I am so praying for sweet Jacob!! Praying for you too.

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  11. Praying for Jacob and for all of you...

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  12. Prayers and hugs for all of you!

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  13. Bless Jacobs heart! I am so sorry...how hard this is for all involved. God is in control and I will be praying for him and you all. God be with you and carry you thru this time in your lives. Love you.

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  14. Keeping your precious Jacob in my prayers.

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