http://en.wikipedia.org/wiki/Orchiopexy surgery will be at the Children's Hospital 75 miles away.
He had his pre-surgery physical today. First he needed a bath. Which he tolerated well considering he still fears the bathtub. I'm thinking by next month he should like baths! Mosie sure does! It is so much fun when they like the water and splash! :o)
Jacob is now 1 week post-op from his less complicated version of the same surgery. He is doing very well. In fact yesterday as Tom carried him to bed, Jakie hung over his shoulder, and patted his daddy on the back. That is huge for Jacob! He still cries through every bath. Poor baby.
Mosie needs this surgery last, maybe in June, Dr said~ after flu season. He has been on antibiotics 3 weeks now and still is constantly congested with green boogies. :o( Poor little guy. His tonsils/adenoids are out so its not quite as bad as before. I'd love to see some normal clear running boogies!!
Three boys still need tonsils adenoids out.
We are getting dizzy, keeping up with weekly and monthly, testing thyroid on three boys now. Mosie off meds till next week? Pauly on meds. Julius saw the Pediatric endocrinologist on Wed., also 70 miles away. Not a fun drive, stop and go traffic almost all the way home. We are waiting on blood tests for?? which thyroid disease it is? possibly meds?? Not sure. I still think its Graves. But the Dr said he is tall and his weight is in the 50th % so she thinks Hypo. We'll see. His levels fluctuate, that's why she thinks hypo, not hyper. But he has the fast heart rate and jumpiness. I noticed some kids in an online discussion had ADD with their hypo thyroid? Pauly and Mosie are quite sluggish without meds. Julius is our only "zippy" guy! Hopefully Monday we'll find out.
Our 3 new students in homeschool are doing fantastic.
Here are a few of their IEP goals we have been working on with a few goals already accomplished!!
stand independently, consistently (accomplished)
hold a spoon
fist grab cheerios to feed himself (he can get 2 in his mouth now!)
chew (yes! he chews!)
understand simple verbal commands in English, like "come here" (he understands some English, no commands yet)
take his shirt off (he can after arms are out)
"pick" a toy to play with (He's very curious about toys now and shows toy preferences!)
hold a spoon (not yet :o(
eye contact 5 seconds ( almost!)
stand (he will only stand in the playpen to watch TV)
move feet independently, while assisted with walking (coming)
help put shirt on (he will now assist with arms going into his shirt)
chew (not yet)
eat small chunks without choking (we weren't sure if he'd be able, he used to swallow "hard", but he is eating small chunks now.)
sign "eat" (he is so pre-occupied with eating, he refuses to wait, he cries to eat if he sees food)
respond to commands in English- right now we are doing "look" (depending on his mood, he will look if asked)
stand (YES!! he can!!)
drink from cup (not yet)
hold spoon (yes)
make sounds other than laughing (we ask him to listen & mimic us, not yet)
brush teeth (yes, he can hold his toothbrush now!)
take off shirt (still a struggle)
We have a big blue therapy ball for developing core strength. The boys sit on it, Roll side to side sitting and lay on their tummies on it. They love it!
The goals for the boys are about the same. We could easily have them all do the same goals. All three are starting from scratch. But we try to set them according to their interest and motivation. Then we take into consideration their age, size and strength.
It is easier for Noah and Jacob to physically do some things, than it is for Moses. All goals are in place to teach independence. For example, Noah stands easily and readily, we are going to ask him to "walk" to us next. Jacob's legs are weak. He may not walk. We still hold him standing in front of us and we move his legs one foot at a time with our legs. He may never be strong enough to walk. But as long as we can keep strengthening his legs, he can bear weight, which is crucial as he grows. Moses can stand, which is a huge help, but we are not asking him to walk in any way yet. He is doing 4 point crawling! Drs have no idea if he'll be a "normal" size like Jacob. If he is unable to walk unassisted, his smaller size will make helping him easier.
We work one hour a day on the specific goals. We break it up to as many as 4 sessions. It has really helped the boys become more flexible in their days. They "look foreward" to us requesting these things and working on them. So when we try new things they are more open to trying something new!
I wish you could hear my 4 helpers (Isaiah,Kitty, Lysa and Faith) as they help me through out our day. It always amazes me how sweetly they talk to their brothers, as if the boys are the best part of their entire day! They make finding clean pants and t-shirts sound like great fun! And as they help change their clothes, or feed them, they even laugh with great joy~ ! It is music to my soul to hear their love for their little brothers, little boys that others didn't have time for. My helpers are wise beyond their years!
Our cup is running over! Thank You God!