Welcome!! Grab a cup of coffee and visit with us! We hope you enjoy our story! (((HUGS)))

Welcome!! Grab a cup of coffee and visit with us! We hope you enjoy our story! (((HUGS)))
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Friday, November 30, 2012

So much JOY!

Jacob is healing.

He is one year post op brain surgery now.

He is slowly becoming interested in more things and seems to be growing stronger as he gains weight and grows! He was 25 pounds, 2 1/2 months ago. Now he is 32 pounds!

One of the things we hope for him, is the healing of whatever was done to his brain. We have hope that because he is young, his brain can compensate for what was done. They say in the medical journals children can develop and heal easier than adults in their brains. This would be an answer to prayer!

He will still have Cerebellar Hypoplasia. A small cerebellum. Which causes some of the same things his Arachnoid Cysts on his brain cause. Ataxia type symptoms. ( symptoms of a disorder that features cerebellar hypoplasia might include floppy muscle tone, developmental or speech delay, problems with walking and balance, seizures, intellectual disability, and involuntary side to side movements of the eyes) And he has difficulties with his emotions.

But now we see Jacob sit up longer and longer without slouching over to lay down. We see him stand longer! He is able to stand on his own by leaning on something. He is doing his many many self stims less. Which is amazing! He seemed to be driven to do these self stims over and over. It was to the point that many times we were in tears watching him. The other boys respond well to re-direction, Jacob does not. Whatever is happening we are thrilled, he's finally relaxing!

Tom really felt that Jacob could watch TV. But his Dr and I did not think this was possible.  Now I see, he does watch TV!!! He needs to stand quite close to it. He has favorite shows! And he likes football!!

He also closely watches rolling toys and cars going down a track.
He can't crawl but he is pulling himself to toys. He "looks" like he is trying to figure out how to un-assemble them! And if his hand is weak - he shakes it!! As if to get it to work! He likes toys that need to be manipulated- shaken, twirled. He doesn't like the electronic toys. he doesn't press buttons!

So many new things! So many improving things! So much HOPE! So much JOY!!
                                                   ~Praise God!~

9 comments:

  1. Praying for healing! Love the update and how much he is improving!

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  2. I thank God for giving him the perfect family to help him heal. Your constant love is a huge factor in this. Nutrition. Treating him like the beautiful child of God he is. Oh I have a huge soft spot for Jacob.
    Bloom sweet boy, bloom!

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  3. Oh, Jacob! What an encouraging post ... these little steps that truly are huge! Praises to God for making y'all family!

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  4. I have been reading in another family's blog about their daughter with brain trauma and how they are using fish oil supplements to help her brain recover--how studies have shown that fish oil helps the brain recover from injury. I wonder if you might try giving Jacob fish oil supplements, to see if that helps him heal? Just an idea! : )

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    1. Thank You! I'll ask his Dr on Monday how much we can try! (((HUGS)))

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    2. I assumed you would have heard this story, so thought I might be giving you info you already had thought of--but if you have not heard this story, I encourage you to take a moment to visit this family's blog--I think they are people you would like very much!
      http://myreallifebyyvonne.blogspot.com/

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    3. The blog I shared the other day just today had a post in which they talk about the specific kind of fish oil they are using, which is considered so much better than the over the counter stuff you might find. So please go to the blog link above (well, cut and paste into your browser) if you want to know more. : )

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    4. yup! I went there!! :o) I didn't realize it was Selah's momma. I called our Dr Tuesday and they are looking into it for Jakie!! :o)
      Thank You (((HUGS)))

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  5. Oh Jacob!!! Praise the Lord. I pray you will continue to heal!! You are one special little man! Be good to your parents...they are pretty special too. :) Much love!

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I love comments :o) so please be kind! (((HUG)))