Friday, November 30, 2012
So much JOY!
He is one year post op brain surgery now.
He is slowly becoming interested in more things and seems to be growing stronger as he gains weight and grows! He was 25 pounds, 2 1/2 months ago. Now he is 32 pounds!
One of the things we hope for him, is the healing of whatever was done to his brain. We have hope that because he is young, his brain can compensate for what was done. They say in the medical journals children can develop and heal easier than adults in their brains. This would be an answer to prayer!
He will still have Cerebellar Hypoplasia. A small cerebellum. Which causes some of the same things his Arachnoid Cysts on his brain cause. Ataxia type symptoms. ( symptoms of a disorder that features cerebellar hypoplasia might include floppy muscle tone, developmental or speech delay, problems with walking and balance, seizures, intellectual disability, and involuntary side to side movements of the eyes) And he has difficulties with his emotions.
But now we see Jacob sit up longer and longer without slouching over to lay down. We see him stand longer! He is able to stand on his own by leaning on something. He is doing his many many self stims less. Which is amazing! He seemed to be driven to do these self stims over and over. It was to the point that many times we were in tears watching him. The other boys respond well to re-direction, Jacob does not. Whatever is happening we are thrilled, he's finally relaxing!
Tom really felt that Jacob could watch TV. But his Dr and I did not think this was possible. Now I see, he does watch TV!!! He needs to stand quite close to it. He has favorite shows! And he likes football!!
He also closely watches rolling toys and cars going down a track.
He can't crawl but he is pulling himself to toys. He "looks" like he is trying to figure out how to un-assemble them! And if his hand is weak - he shakes it!! As if to get it to work! He likes toys that need to be manipulated- shaken, twirled. He doesn't like the electronic toys. he doesn't press buttons!
So many new things! So many improving things! So much HOPE! So much JOY!!