Monday, October 8, 2012
When a boy with DS has been hurt beyond his ability to mentally survive
"Is it a TBI (Traumatic Brain Injury)?
Or could it have been a high fever, virus, left untreated?
Or is it mental illness from enduring the horrors of 7 1/2 years in a place that killed 18 other children in 2011."
We have lots of tests set up.
Jacob is a baby. Mentally he is a baby. A 6 month old baby.
When Tom saw him the few times, and the few minutes, they let him in April, he was different. Was he medicated? Why was he able to "cope" better? They said his visits were short and few because he was "sick". Well of course he looks like he doesn't feel well, when you see how he "acts". Is that "sick"?
I hold him when he lets me. He does "know" people. He knows Gabriel, but Gabe has a hard time being with a boy like this. He knows Dad, Dad brought him home, Dad feeds him, he responds to Dad as a person he accepts. For the rest of us he cries like a baby. We may be too many, too much for him. He'd sit or lay quietly the entire day if we let him. But we talk to him. We try to "pull" him out. We act as though he's responding even if he doesn't.
Jacob has very bad nystagmus, he can't support his weight on his legs. Altho last year we saw a photo of him "semi" standing in a crib. His hands can't pull a toy out of a toy bucket. He fights us to flop his legs out of his hip sockets. He makes sounds to comfort himself, but not to communicate. He only responds to eating, flashing lights and musical toys. He used to hold onto Dad's arm as he fed him. As if he was afraid Dad would stop feeding him. He's more relaxed now eating.
When Julius and Pauly were sick their appetites dropped. Jacob, Noah and Mosie ate tons while they were sick. It was so sad. They are so hungry.
Thank You for helping us bring Jacob home. Thank You for helping Jacob have a life with LOVE just the way he is. My tears flow as I hold him and think, there are so many more Jacob's out there. Will anybody LOVE them? Will anybody LOVE a boy who was hurt beyond his capabilities to survive? A boy who may never love you back?