I knew something was terribly wrong with Jacob. I knew in my momma's heart. I took this beautiful boy into my heart as my son. And my momma's intuition told me. Something terrible is wrong.
We were waiting to ask the Drs to help solve the mystery. Jacob had a Dr appt. on Tuesday. I cut Noah's hair for his Monday Dr appt, and then I cut Jacob's beautiful brown locks.
This is what I found.
But oh how I wish, Dear Precious Lord, I had been wrong.
When you get the file of a child to commit to, there is a medical profile. Then you should get it updated if anything happens before the adoption.
Four of our 5 boys have the same medical information on their adoption papers as their files. You don't get to see the adoption medicals until after you adopt the child. He was adopted in July- Tom saw the papers in September. So we had breezed through reading Jacob's, not noticing that between 2005 and 2007 something new was added!
Nov. 11, 2011- Nov. 21, 2011 he was hospitalized in St I*** R*** in S****. For Endoscope fenestration (BRAIN surgery) of the arachnoidal cysts.
and the 2nd sentence said he returned to the hospital Nov. 23rd to Nov. 30th and "was again hospitalized". What happened?
These cysts are serious. That surgery is somewhat experimental- NOT a cure. There is no cure for these cysts.
TWO hospital stays within days? That's a 3 hour drive to and from his orphanage. Eighteen children died in his orphanage in 2011, why weren't they hospitalized?
No information was given on the out come of the surgery.
None of his medicals given to us before, ever stated anything about arachnoidal cysts or health issues suggesting them. And the symptoms we read were so vague you'd need the child to "tell" you they had them. Plus there were many children in that orphanage that "presented" with multiple symptoms so obvious (like hydrocephalus) that were not treated. Why?
Jacob's brain surgery could have waited till we brought him home.
We committed to Jacob in Dec. 2010. Mosie was very sick in August 2011, they told us because a friend was there and to see him she had to go to the infirmary where he was. They said if Mosie was too sick they could take him to the Children's Hospital a few miles away.
When Tom visited the 3 boys in April, Jacob was 5 months post op.
They told him he was sick with a virus. Now we don't believe that. Jacob's visits were very brief and Tom was with our 2 other boys plus another adoptive family and the translator in a tiny room. They had to sit in that room crowded together. Tom could not have noticed anything different about Jacob in that short time.
Once home we had noticed Jacob's left leg was weak. Our Dr showed us it is smaller and atrophied. It is weaker. Also Jacob's left arm is smaller. (This was not in his medical file.) But his right arm is weaker. Most likely from the surgery. If it was the "left" arm it would have "matched" the left leg weakness.
Our poor Jakie cried when we had him bear weight and "walk" with us. We had no idea, it must have been painful.
Now when he looks "out of it", I think his head must feel incredibly "odd" to him post surgery.
Right now Jacob is 10 months post op. On his trip home he was 9 months post op. What if he'd had a seizure on the plane? Tom had no idea what poor precious Jakie needed. He had no idea what Jakie had been through. We can't even imagine how he feels right now? Does his head hurt? Does he have pain?
He went through this surgery alone.
You/we all prayed him home, donated and helped him have a family.
God Bless you!
He has a referral to see a pediatric neurologist. Then he'll get his MRI. And we'll really know more about what happened to him and if he needs future surgery. We should then know how dangerous the cysts are to his health, if he has them. And how to better care for his needs.
Precious Lord in Heaven we THANK God for this beautiful boy.
Please pray for Jakie with us.
(((HUGS))) We LOVE you ALL!