Thursday, October 4, 2012
Down Syndrome and Autism
I read that they think Autism in DS is or could often be caused by a serious illness or trauma. We think Pauly's stemmed from his heart surgery. The scar on his chest is huge and shaped like a small mountain. Not flat and symmetrical like Samson's.
Who held Pauly after his heart surgery? Who managed his pain? Who gave him the will to survive? All of us adoptive moms feel the same heart break over not having been there. Pauly was alone. He only had himself. He developed odd inward coping mechanisms.
Or is it "just" Institutional Autism?
Maybe the reason/cause doesn't matter.
I ordered the Autism/DS book from Woodbine House Publishing. I'm excited to get it next month. I'm hoping for more insight.
Pauly has lost some of his strong "Autistic" behaviors in the last year. We replaced the Autistic "routines" of gestures and hand signals, stiffened body; with us and toys. But when the world gets too big for Pauly, he lets us know, a melt down is coming. And he needs us. We thank God that we are here now for him. We are honored and privileged to provide him some comfort for all 4 of the important years he was alone.
Many days I cannot remember Pauly not being with us. He feels like MY son. I feel like I know him, inside and out. The three new boys joining the family confirmed this bond between Pauly and I and helped strengthen it. The new boys were/are new. I'm getting to know them. But my heart already knows my Pauly. I love him more each day!
We like to pretend "fight" over him! I say "Hey! That's my Pauly!" and then the the kids say "No! He's MY Pauly!" Then we say "Give him to me!"- "No, give him to me!!" He loves the attention!
Everyday at nap time I tuck Pauly in to one end of the bottom bunk bed, and Julius into the other end. Then I clean up toys. Julius, always the stinker, gets up, throws Pauly's pillow out of bed, removes Pauly's socks and throws them on the floor.
And Pauly laughs!! Pauly I LOVE you!